Please take the time to watch this video...our family has been greatly touched by this disease. George died and although it took his death, doctors acknowledged he had this, even though I knew he had it the day he was born. Joshua and Michael have fought each day of their lives with this disease. Hugh and I have recently found that we each have the disease but in different forms and severity. I have Complex I and am quite affected and Hugh has Complex IV and is slightly affected. Without more research others will never know if they have the disease or if they carry it and could pass on to children. There is no cure and treatment varies just like the people diagnosed.
George's Guardian's of Grace Projects
Stocking project is now in full force collecting donations. We have a list of the items we can use. You can also choose to sponsor a stocking in memory or honor of someone else. We will include a paragraph or two in the cards we place in the stockings to let the recipient know about the person that means so much to you. Our paypal account is posted on this page and ready to take donations. Email us for a list of items needed or with any questions or information you would like included on a sponsored stocking/donation.
Video Tributes/Celebration of Life Footage
Here is a link to a video tribute that was made by Richard's dad in memory of George. Get out your tissues!
We Finally have footage from the service up and running:
It is in 4 sections running about 17 mins each. If you were unable to attend, you can now see what you missed. We were so blessed to have everyone there with us in person and in spirit!