I entered George's famous picture into the Baby of the Week contest that Virtua has online through Facebook. He won! God do I miss him and his precious personality. I wish he was here to do all those things that kids his age are suppose to be doing. He has been on my mind so often these past few weeks and a lot today. I miss just holding him and hugging him on a bad day...all the bad stuff would just drift away and somehow he made it all better. Now the thought of holding him just brings this whole set of pain and feelings along with aching arms yearning to hold him again.
This week happens to be Mitochondrial Disease Awareness week. Hugh, the boys, and I are all walking in honor and memory of the boys. Although I know in my heart that George had this disease, I wish that there was someway to truly know. It sounds odd but when you have no answers as to why your child died and they leave so suddenly and unexpectedly it is very hard to live with. Many doctors have told me that they feel he had it and that it was likely the reason he died but I will never really know and that is such a hard thing for anyone. Even if he didn't die from it, I do know he did have it and was my most affected child. You would never know by looking at him since he was just perfect. Those big blue eyes and huge smile and infectious laugh were always deceiving to everyone. It is such a shame that this is how it is for most of those who have this disease.
Please consider walking with us this weekend or supporting our team...Mito Monkeys
http://www.energyforlifewalk.org/site/c.bkLPKbOULlK8E/b.6007329/k.BEF5/Home.htm
Also take the time to educate yourself about the disease, you cant tell someone has it just by looking at them. There are so many people who have this that don't even know it. For more information visit:
www.umdf.org
www.mitoaction.org
Help give families the hope of a someday finding treatment or a cure!
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