George Charles Garman 09/09/09 to 01/29/10

January 29, 2010 our world was turned upside down when our 4 month old little boy earned his wings after a battle with Mitochondrial Disease and awoke in the Lords loving arms.

"Life can not be measured by the number of breaths you take, but by the moments that take your breath away."

George's Guardian's of Grace Projects

Stocking project is now in full force collecting donations. We have a list of the items we can use. You can also choose to sponsor a stocking in memory or honor of someone else. We will include a paragraph or two in the cards we place in the stockings to let the recipient know about the person that means so much to you. Our paypal account is posted on this page and ready to take donations. Email us for a list of items needed or with any questions or information you would like included on a sponsored stocking/donation.

Wednesday, November 2, 2011

New Mito Diagnosis...good and bad

Today the researcher handling Mito diagnosis called with the results from our whole family mouth swabs...this is what came of it and where we all stand.

Hugh- Slight complex IV deficiency

Me-Severe Complex I deficiency along with elevated enzyme that creates Mito production...the most affected in the family.

Richard-not affected

Joshua-no longer showing deficiency and following in the "low" of "normal" range...he was on the mito cocktail when tested.

Michael-same as last time, still deficient in Complex I and IV

Gabrielle- Not affected

I'm still trying to wrap my head around all of this, I will post more later once I have had time to figure out where we are going with all of this info. It is nice to know I am not crazy but not so fun to know you have a disease that you can't get treated locally for and insurance doesn't cover the specialists in the field. I'm praying to be able to wrap my head around this and find out where I am suppose to be with all of this. I was not surprised to find out I had it but was quite shocked to hear I was the worst where defects are concerned. It really does explain a good chunk of my life and all the problems I have had along with the exhaustion on a regular basis. Please keep me in your prayers as I learn to accept this new diagnosis.

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Video Tributes/Celebration of Life Footage

Here is a link to a video tribute that was made by Richard's dad in memory of George. Get out your tissues!!/video/video.php?v=1360981185308&ref=mf

We Finally have footage from the service up and running:!/video/video.php?v=1368692138077&ref=mf!/video/video.php?v=1368733099101!/video/video.php?v=1368770540037

It is in 4 sections running about 17 mins each. If you were unable to attend, you can now see what you missed. We were so blessed to have everyone there with us in person and in spirit!

Me With My Prince Charming In Front of the Castle

Me With My Prince Charming In Front of the Castle