Another Week

It amazes me how many weeks have gone by since our angel earned his wings. In so many ways it seems like it was just yesterday and then again it feels as if it has been an eternity. Our lives have just been turned upside down and I still am struggling to figure out how to turn it over again. I know it is going to be in God's time and not mine but sometimes I just don't get it all.

Sometimes I just wish it was not all so hard and I feel like I have had my share of hard and unthinkable tradgedy in my life already. That overwhelming feeling of when will this all end and how much can I really handle can be so difficult to live with at times. It seems as if it is always pouring sometimes.Amidst all the rain that comes pouring, there are always those moments where it lets up or the sunshines through. Those are the moments that make it so you can keep going through the horrible storm you are walking through.

I have always wanted to make loosing George more then a tradgedy though. I've fumbled over and over again trying to think of what I want to do and how to go about doing it. The in service at the hospital is coming up soon and I am quite excited about it. I'm going to begin working on the presentation and gathering materials for the staff. Along with that we, as a family, have decided that we want help raise money to help out Comfort Zone Camp which has touched our lives in such a profound way. We are thinking of running a fundraising campaigne for a few weeks starting during Joshua's birthday and ending the day that our angel would have been a year old if he had been here.

I have already contacted the local news station and they want to know what and when we are doing this. We have decided to start collecting supplies that the camp always uses along with financial donations. I think I am going to call it Komfort for Kidz campaigne. Joshua wants a luau birthday so I think we are going to ask people to bring supplies for camp or donate money and we are going to call it "Luau for Love". I want to get some boxes for supplies and jars for monitary donations together and go to local companies and ask them to put them in their stores to take in collections and will list then on a fundraising web page. The item donations are going to be called "Supplies for Survivors" and the financial donations we will call "Funds for Families" and then on or near George's birthday we want to put together a brunch/auction and call it "Forever Family Fare" I think it will be an awsome way to celebrate his life and make the day he came into our lives such a momentous thing, even though he is not here, on so many levels.

Comfort Zone Camp really touched our family in a profound way and I want it to be available to other families and help them to continue their work. They touch so many lives at the worst point in the individuals life and they try to take down all the financial barriers for people to get the help they need. To just support one cause like SIDS or Mito is just not as great as one that will touch millions of lives. We cannot prevent death so this is going to be an ongoing need since death will never have a cure like so many disease will. 1 in 8 children will have lost a parent or sibbling by the age of 20. That does not include those who loose other relatives so that number is just staggering! Because the toll grief takes on a family, many children go for years if not a lifetime without the proper help and tools to help them through grief. We have watched it happen to our family first hand.

That of course does not mean that I am giving up my efforts for Mito advocacy by any means. I still have children here who fight this disease every day. Hugh and I are planning to walk in honor of our boys in September at Campbell's Field in Camden for the UMDF. Ok, I know I am not a huge fan of their group or how they run the organization at times. I have however come to realize that there are not many organizations out there that I agree with 100% anyway and they have always been willing to send me literature and any other information that I need to continue my quest to educate people. For that very reason alone, I feel the need to walk. Without the organization research would not me as far as it is now...yes it could be further due to some management issues but there is no one else out there supporting this disease. They have created great resources for doctors and anyone wanting to find out more information. We are looking for people who would be interested in walking with us or sponsoring us. Our team is called Mito Monkeys and here is our team page. http://www.energyforlifewalk.org/c.bkLPKbOULlK8E/b.6007487/siteapps/teampage/ShowPage.aspx?teamid=3764908

I know there is just a greater purpose for my life here otherwise I would be with my angel. In my heart I know this is what I am meant to be doing. Things will work out to make these ideas and things happen should they be meant to be. There has got to be a greater purpose to all of this pain and suffering. I can't cure the world but I can help those going through some of the worst experiences of their lives. It is only when we allow our problems to make us feel helpless have we allowed them to get the best of us, rather then rising to the occasion and becoming greater then the tradgedy. I want the sun to shine through the rain so that I can find the rainbow, the very promise that God will always be with us and not allow us to walk through life alone.