In my mind I have been trying to do a lot of connect the dots in terms of the boys and their symptoms. I find it ironic that both George and Josh's issues were coming out of sleep. There has got to be a corrolation between the two. I had done some research on the connection between Mito and SIDS. Recent research showed that infants dying from SIDS had low seratonin levles. I don't necessarily think that itself is the problem but think there may be something there.
When you make that chemical, you need magnesium and B6. I kept coming up with a magnesium deficiency issue. Apparently you can have fine magnesium counds in your blood but not actually be getting enough if your body does not metaboize thing properly. You actually have Magnesium stores just like iron stores but testing for this is very difficult from everything I have read thus far. You counts change based on diet and things of that nature and fatty things.
It says that many of the people who have trouble have many of the symptoms the boys have had. We had taken George off of his additional OTC antacid which contained Magnesium and put him on a pump inhibitor and the Zantac. I know the Zantac had Magnesium in it but I don't wonder if it was just not enough.
The more I researched it, Magnesium affects your central nervous system and the center where breathing, waking, temp regulation and things like that. Apparently your body will pull from it's stores to make sure that your blood Magnesium stays stable so actually detecting the dysfunction is virtually impossible. Magnesium is key to ATP production, which is the chemical that the Mitochondria actually produce.
Dispite the fact that baby formula has enough Magnesium in it for a normal baby, it may not be for one who has a metabolic disease or who's body does not use it appropriately. The last week of George's life he had stopped sleeping and taking naps during the day but would crash at night. We had attributed it to possible teething and getting accustome to the new meds. All of our kids had always had issues whenever there was a change. Josh himself has been going downhill lately and we just could not figure out why. He usually took Gatoraide daily for issues with fatigue. It was always wierd when his labs came back norm being on it for a long time when you are suppose to use it in small amounts and was why we kept trying to switch him to something else.
Josh has since switched to milk and has started a steady decline. There is quite a bit of magnesium in Gatoraide so that truly makes me wonder if there is not a connection. Michael has always drank soy milk which has a higher Magnesium content and he has had less issues then the other two kids. I am not saying that this is the cause of it all but I feel as if it is worth looking into and bringing up to the doctors. I don't necessarily think that it has much to do with the low Seratonin like the SIDS article said but rather a possible metabolic issue with Magnesium. Amino acids are so key to metabolic function that it would not be a huge surprise if this contributes to some of the problems. There is at the very least a need to rule this issue out on my part. I'm going to bring it up to the docs this week, especially when I talked to my older sister who said she was told she has a magnesium deficiency.
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